BOSTON, Massachusetts – Superstar Michael Jackson suffered from it.
But so does actor Jon Hamm.
And fashion model Winnie Harlow.
And people like Barbara Hamilton. Every time she steps outside, she covers up because she's ultra-sensitive to the sun.
It's one side effect of the skin condition vitiligo.
Barbara first noticed a white patch on her leg when she was 25.
"When it hit my face, my forehead, that's when I got really concerned about that."
Over the years, Barbara tried medication and lightbox therapy to restore color, but nothing worked for long.
"I did repigment to some degree, but as I was repigmenting other areas were depigmenting," she said.
She went to Dr. David Rosmarin, the vice chairman of of Research and Education in the Department of Dermatology at Tufts Medical Center.
"Even though so many people suffer from vitiligo, there are currently no FDA-approved treatments to repigment vitiligo," Dr. Rosmarin explained.
MORE ABOUT THE STUDY: Tufts sponsored a study that involved 157 patients, which is the largest vehicle controlled double blind study that's ever been conducted in vitiligo to see if it would help patients repugnant, particularly on the face. After six months about half the patients and the two highest doses of ruxolitnib cream re-pigmented "quite well" on the face, according to Dr. Rosmarin.
"We're also optimistic that with continued use, so when you hit the year mark and beyond that there will be even more patients who repigment significantly."
Over the past 16 years, Barbara says her face has depigmented.
Although she was not part of Dr. Rosmarin's trial, she spends her time in retirement advocating for vitiligo patients.
"We are actively looking for treatments," she said. "But until that time, you have to love the skin you're in."
If this story has impacted your life or prompted you or someone you know to seek or change treatments, please let us know by contacting Jim Mertens at firstname.lastname@example.org or Marjorie Bekaert Thomas at email@example.com.